Anti-Glomerular Basement Membrane Disease
Launched by REGION SKANE · Jun 4, 2025
Trial Information
Current as of July 12, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial is looking at a rare but serious condition called anti-glomerular basement membrane disease, also known as Goodpasture's disease. The researchers want to understand how different treatments and the severity of the disease at the time of diagnosis affect a patient's chances of recovery. The study has two parts: one part will focus on the types of treatments patients have received, while the other part will analyze blood and urine samples to see how these factors relate to kidney health and overall survival six months after diagnosis.
To participate in this trial, patients need to meet certain criteria. For the treatment-focused part, they must have been diagnosed with anti-GBM disease between January 1, 2010, and December 31, 2027, and have information about their initial treatment. For the biomarker part, there is no time limit on their diagnosis, but they must have blood or urine samples from when they were diagnosed and information about whether they survived for at least six months after diagnosis. Participants can expect to contribute valuable information that could help improve treatment options for others with this condition in the future.
Gender
ALL
Eligibility criteria
- Arm A:
- Inclusion Criteria:
- • Anti-GBM disease diagnosed 01-01-2010 - 31-12-2027
- • Available information about initial treatment
- Arm B:
- Inclusion Criteria:
- • Anti-GBM disease diagnosis (no time limit)
- • Available blood and/or urine sample at the time of diagnosis
- • Available information about patient survival at six months
About Region Skane
Region Skåne is a leading healthcare authority in Sweden, dedicated to advancing medical research and improving patient care through innovative clinical trials. Committed to fostering collaboration between researchers, healthcare professionals, and patients, Region Skåne aims to enhance the understanding of various health conditions and develop effective treatment strategies. With a focus on ethical standards and patient safety, the organization plays a pivotal role in shaping the future of healthcare in the region and beyond, ensuring that clinical trials are conducted with the highest level of scientific rigor and transparency.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Lund, , Sweden
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported