Parent Navigator Program (PNP) to Improve Outcomes in Latino/x Children and Parents

Launched by CHILDREN'S HOSPITAL LOS ANGELES · Jun 10, 2025

Keywords

ClinConnect Summary

This clinical trial is studying whether a special support program called the Parent Navigator Program (PNP) can help Latino/x parents of babies born with congenital heart disease (a heart problem present at birth) better connect with important early development services. The study wants to find out if parents who get help through the PNP are more likely to use follow-up care for their high-risk infants, if their children show better development after six months, and if the parents experience less stress compared to those who receive regular care.

Babies eligible for this study are Latino/x infants who were born with heart problems requiring medical treatment within the first month of life. Their parents, who also need to identify as Latino/x and speak either English or Spanish, can join the study too. Families who participate will have their baby’s development checked at birth and again at six months. Those in the Parent Navigator group will receive weekly phone calls from a trained guide who helps them access services, and six months later, parents will be asked about their experience with the program. This study aims to support families in getting the care they need while also helping reduce stress during a challenging time.

Gender

ALL

Eligibility criteria

• Latino/x Infants:
• Inclusion Criteria:
• • Infants born with CHD requiring medical/surgical intervention at less than 30 days of age
• • Identify as Latino/x
• Exclusion Criteria:
• • Presence of a major genetic syndrome
• • Intraventricular hemorrhage or other major structural brain lesion
• • Undergoing end of life care
• Parents of Latino/x Infants:
• Inclusion Criteria:
• • Identify as Latino/x
• Exclusion Criteria:
• • Not fluent in English or Spanish