Blog

ClinConnect Data Report: Step-by-Step Enrollment in Ultra-Rare Trials

A practical, inclusive step-by-step guide for families and site teams on enrolling children in ultra-rare trials — from diagnosis and compassionate care to flu-season protection and orphan drug access.

Next-Gen Access to Wilson & University Rare Trials + School/Flu Prep

Analytical outlook on how university trials, digital matching and school-readiness converge to improve access for Wilson's disease patients, with targeted flu-season guidance for immunocompromised children.

Predicting Orphan Drug Timelines: Questions to Ask About Rare Trials

A focused deep dive on predicting orphan drug timelines: what drives variability in rare trials, the key questions to ask before enrolling, and practical protections — including flu‑season safety — for patients with treatment‑resistant conditions.

Trend Report: Local Rare Trials, Flu Safety & Gene Therapies

A practical trend report for patients and caregivers: where to find rare disease trials near you, flu season safety for rare disease patients, caregiver guides to orphan condition treatment plans, and how experimental gene therapies may improve outcomes.