Validation of the French Version of the Primary Lateral Sclerosis Functioning Rating Scale (PLSFRS)

Launched by UNIVERSITY HOSPITAL, TOURS · Mar 10, 2025

Keywords

ClinConnect Summary

This clinical trial is designed to test a new tool called the French version of the Primary Lateral Sclerosis Functioning Rating Scale (PLSFRS). This tool helps doctors understand how primary lateral sclerosis (PLS) affects patients' daily lives and abilities. The goal is to make sure this tool works well for French-speaking patients, so it can be used in future studies and treatments.

To participate in this trial, you need to be over 18 years old and have a diagnosis of primary lateral sclerosis. You will be asked to sign an informed consent form, which means you agree to take part in the study and understand what it involves. However, if you can’t read or write in French, or if you have difficulty answering questions, you may not be eligible. The trial is not yet recruiting participants, but it will involve patients from various ALS centers in France. If you join, you'll help improve understanding and care for people living with PLS.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patients with primary lateral sclerosis (PLS)
• • Age over 18 years
• • Informed consent signed
• • Patients cared in a French ALS centre
• Exclusion Criteria:
• • patients with no oral and written command of the French language
• • Patients unable to answer a questionnaire
• • Opposition to data processing