Optimizing Health Related Quality of Life Measurement in Adolescent and Young Adult Oncology

Launched by WAKE FOREST UNIVERSITY HEALTH SCIENCES · Mar 19, 2025

Keywords

ClinConnect Summary

This clinical trial is focused on understanding how young people aged 15 to 39, who have cancer or are caregivers for someone with cancer, respond to specific questions about their health and quality of life. The goal is to improve the way we measure how cancer affects young people's daily lives, which can help in providing better care for them and others with chronic health conditions. The study is currently active but not recruiting new participants.

To be eligible for the trial, participants who have a history of cancer must have been diagnosed between the ages of 15 and 39 and should either be receiving treatment or be within 10 years of completing treatment. Those without a cancer history can also take part if they meet the age and language requirements. Caregivers of young adults with cancer can join too, as long as they are 18 or older and their child or partner is between 15 and 25 years old and meets the study criteria. Participants can expect to share their experiences and opinions, which will help shape future care and support for young people facing cancer.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• AYAs WITH A CANCER HISTORY:
• * AYAs will be eligible for this sample if they:
• • Are 15 to 39 years of age
• • Were first diagnosed with cancer at 15 to 39 years of age
• • Are able to read and understand English
• • Live in the United States
• • Have a new cancer diagnosis and are receiving curative treatment OR are currently 0 to 10 years post-treatment.
• AYAs WITHOUT A CANCER HISTORY:
• AYAs will be eligible for this sample if they:
• • Are 15 to 39 years of age
• • Are able to read and understand English; and
• • Live in the United States.
• CAREGIVERS OF AYAs WITH CANCER:
• * Caregivers of AYAs will be eligible for this sample if they:
• • Are 18 years of age or older
• • Are able to read and understand English
• • Live in the United States
• • Have a child/ward/partner for whom they have provided care, AND
• • Their child/ward/partner is 15 to 25 years of age and meets the other eligibility criteria as an AYA participant with a cancer history (described above).
• Exclusion Criteria:
• AYAs WITH A CANCER HISTORY:
• • AYAs will be excluded if they (1) were diagnosed with basal cell skin cancer; or (2) are currently receiving hospice care.
• AYAs WITHOUT A CANCER HISTORY:
• • AYA patients will be excluded if they (1) have ever been diagnosed with cancer; or (2) are currently receiving hospice care.