Clinical Trials for Tuberous Sclerosis Complex

Epidyolex® in Lennox Gastaut, Dravet Syndrome and Tuberous Sclerosis Complex: an Observational Study in ITALY

NCT ID: NCT05485831

This clinical trial is studying the use of Epidyolex®, a medication derived from cannabis, in patients with Lennox Gastaut Syndrome (LGS), Dravet Syndrome (DS), or Tuberous Sclerosis Complex (TSC)....

Stopping TSC Onset and Progression 2B: Sirolimus TSC Epilepsy Prevention Study

NCT ID: NCT05104983

The Stopping TSC Onset and Progression 2B trial is a research study looking at whether a medication called sirolimus can help prevent or delay seizures in infants with Tuberous Sclerosis Complex (T...

Tuberous Sclerosis Complex and Lymphangioleiomyomatosis Pregnancy Registry (TSC-LAM Registry)

NCT ID: NCT06160310

The Tuberous Sclerosis Complex and Lymphangioleiomyomatosis Pregnancy Registry (TSC-LAM Registry) is a study aimed at collecting important information about pregnant women who have Tuberous Scleros...

Astroscape: a Study of Radiprodil on Safety, Tolerability, Pharmacokinetics, and Effect on Seizures and Behavioral Symptoms in Patients with TSC or FCD Type II

NCT ID: NCT06392009

The Astroscape trial is studying a medication called radiprodil to see how safe it is and how well it works for patients with Tuberous Sclerosis Complex (TSC) or Focal Cortical Dysplasia (FCD) type...

Open-label Study of Adjunctive GNX Treatment in Children and Adults With TSC-related Epilepsy

NCT ID: NCT05604170

Efficacy and Safety of Rapamycin Versus Vigabatrin in the Prevention of Tuberous Sclerosis Complex Symptoms in Infants

NCT ID: NCT04987463

This clinical trial is studying two medications, rapamycin and vigabatrin, to see how well they work in preventing symptoms of Tuberous Sclerosis Complex (TSC) in infants. TSC is a condition that c...

Clinical Presentation and Renal Outcome of Patients With Tuberous Sclerosis Complex and/or Renal Angiomyolipoma in the Great West Region of France

NCT ID: NCT02887781

This clinical trial is looking into how different factors, such as medical history, care received, and genetic information, affect kidney health in individuals with Tuberous Sclerosis Complex (TSC)...

Placebo Controlled Study to Assess the Efficacy and Safety of Rapamycin in Drug Resistant Epilepsy Associated With Tuberous Sclerosis Complex

NCT ID: NCT05534672

The RaRE-TS study is a clinical trial looking at the safety and effectiveness of a medication called rapamycin for people with drug-resistant epilepsy linked to a condition known as Tuberous Sclero...

Feasibility of [11C]Acetate-PET in LAM and TSC

NCT ID: NCT05467397

This clinical trial is exploring a new imaging technique called \[11C\]acetate PET/CT to better understand two conditions: lymphangioleiomyomatosis (LAM) and tuberous sclerosis complex (TSC). The g...